Purpose: Our purpose in this study was to review and synthesize the research literature on the quality of life of both caregivers (CGs) and care recipients (CRs) with dementia after admission to long-term care facilities.
Design/methodology/approach: Four databases – AgeLine, Medline, EBSCO, and PyscINFO – were searched and the relevant literature from 2002 onwards was reviewed.
Findings: The review of 12 studies (5 studies, including only family CGs; 6 studies including residents; 1 study including both family CGs and CRs) reveals a discrepancy regarding the effects of institutionalization on the CRs’ and CGs’ quality of life (QoL). Among seven studies on CRs’ QoL change, some reviewed studies found a significant decline in CRs’ quality of life after placement. Others showed that CRs’ QoL was improved or stable. Although some reports indicated that some family CGs benefited from placement, others showed that CGs merely maintained their QoL. However, family CGs in the reviewed studies were more likely to report improved QoL than were their CRs after institutionalization.
Research limitations/implications: Our recommendations are that future studies should focus on the importance of understanding the individual’s adaptation to placement, dyadic changes in QoL(including mediators / moderators), and we emphasize the need for a comprehensive longitudinal study which has more than 1 wave and includes diverse groups including racial/ethnic minority CGs and CRs.
Originality/value: This study reviewed and synthesized the research literature on the QoL of both CGs and their CRs with dementia after admission to long-term care facilities. The conclusions drawn about influences on QoL provide guidance for identifying best practices and research.
SOURCE: Moon, Heehyul; Dilworth-Anderson, Peggye and Gräske, Johannes. “The Effects of Placement on Dementia Care Recipients’ and Family Caregivers’ Quality of Life: A literature review.” Quality in Ageing and Older Adults, Volume 18, Issue 1, March 2017.